Life with Duchenne and Faith Journey Blog Posts

  • D-Day

    July 8th.  It will forever be the day that changed everything. 14 years ago, on July 8th I was pregnant with my oldest son. It was the hottest summer I have ever experienced. I was… Read more

  • Daddy Long Legs

    I loved the green house.  It was the name my family christened the green house we lived in for several years of my early childhood.  The house several of my sisters came home to after… Read more

  • Snow Days

    Snow days. At the top of every kid’s favorites list. My children enjoyed a snow day today; waking up before the alarms clocks went off, checking to see if school, had in fact, been cancelled.… Read more

  • Hidden Joy

    We live everyday with Duchenne so when I say yesterday was full of it perhaps it’s not clear. The thing is that we get into routines and find our own normal and days turn into… Read more

  • Here I Am

    We woke up to small amounts of snow on the ground anD snow continued to fall most of the morning. Living in a small Midwest community means the snow doesn’t get cleared until the snow… Read more

  • Little White Houses

    Little white houses, the ones you drive past traveling through the Midwest. Little white houses with more paint chipped and fallen to the ground than hanging to the house. Little white houses surrounded by overgrown… Read more

  • Scared

    As a senior in high school I was very engaged in a creative writing class. I lived in a foster home until my 18th birthday, January of my senior year. I finished it living with… Read more

  • Slumber Party

    Let me paint a picture of this boy. Rowen was standing in the chip section at Walmart. His back arching with the lordosis caused by Duchenne. He was holding a party sized bag of Doritos… Read more

  • Lexi

    Today is one of those milestone days for a senior in high school. Today, Lexi will play basketball for the last time in Chapman Gymnasium. Chapman has been a second home to her since 7th… Read more

  • Truths

    Through God’s challenge to see myself as He sees me I have commutes to 30 days of writing. Writing is for me more than anyone else; so if you all check out before the 30… Read more

Welcome to my blog!

I’m Betty, a married mother of seven. Three of my sons live with Duchenne muscular dystrophy. I am a faith loving person, who loves to cook and read, but mostly mother. I use this blog to share recipes, review books, and share my parenting and faith journeys.

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