Life with Duchenne and Faith Journey Blog Posts

  • The Mass and the manger: my interactive Christmas story

    The Mass and the Manger: My Interactive Christmas Story is a fun and meaningful new children’s book the whole family can enjoy. It tells the story of the first Christmas and then, using interactive full-page… Read more

  • Book Review: Essential Eucharistic Adoration

    Marie Paul Curley, FSP, has compiled the perfect pocket-sized book of prayers to enhance your experiences in Eucharistic Adoration. Essential Eucharistic Adoration Prayers include the following sections: biblical prayers, prayers of adoration, prayers of praise… Read more

  • A Christmas reset

    Check. The last gift is ordered. Check. The uniform is clean for the basketball tournament. Check. The baseball-playing son is registered for camp. Check. The laundry is done, and I am ready to pack for… Read more

  • When Holidays are Tinted with Grief

    I have no reason to feel sad, yet a piece of me is hurting. I think this way every holiday season. I watch my children, taking snapshots of them in my memory, wishing I could… Read more

  • Trusting that I am Where I Should Be

    “Be Who God meant you to be and you will set the world of Fire” St. Catherine of Siena .  The number of times I’ve seen this message and the reflection stirred up has made… Read more

  • Looking Back and Ahead: Reflecting on My Words for 2020 and 2021

    Resilience was the word God put on my heart for the year 2020. When I chose the word I thought the year would be about healing some past hurts. It did, but in ways I… Read more

  • Finding Trust in the Moments

    I’ve had these little, almost imperceptible moments over the last few months. Moments that I would take in, understanding they were valuable and just holding them. These moments have been lessons in trust. There is… Read more

  • Always and Forever: Our experience with marriage and Duchenne

    We were 19 when we met, 21 and 22 when we married. We were young and goofy. We habitually said “Always and Forever” sometimes instead of “I love you.” I was a hot mess when… Read more

  • A PIECE of ME was lost when my son stopped walking

    I lost it today. That is the truth. But the more I think and mull it over, the more I know I didn’t lose it today. I simply lost another piece of me. I will… Read more

  • Distance

    My word of the year for 2020 is resilient.  I picked this word long before I was concerned about a worldwide pandemic, before we isolated ourselves for months, before there was a health recommendation to… Read more

Welcome to my blog!

I’m Betty, a married mother of seven. Three of my sons live with Duchenne muscular dystrophy. I am a faith loving person, who loves to cook and read, but mostly mother. I use this blog to share recipes, review books, and share my parenting and faith journeys.

Find us on: