Life with Duchenne and Faith Journey Blog Posts

  • There are holes that only God can fill

    It stems from my childhood, I think. The need to be strong. And if strong is never getting hurt, then I know I’m not. But if strong means getting back up again when I get… Read more

  • Anchor of Hope

    It’s been a month since my mom died. I’ve pushed myself too hard to stay busy and not feel what I know is just below the surface. I went to state volleyball, I painted my… Read more

  • Max’s Birthday

    Today is your 13th birthday, but the story of you started years before that. It was just me and dad and Lexi. We were happy but something was missing. Lexi and I especially thought so.… Read more

  • The Weight of Love

    In the early years of our relationship my husband and I shared a twin bed. We were young and poor and in love. I never remember thinking that we needed a new or bigger bed… Read more

  • My Book of Joy

    After a year without a weekly hour of Eucharistic Adoration (A Catholic practice of spending time in front of the Eucharist, Jesus). It was something helpful to me. I always felt closer to Jesus when… Read more

  • 8 Years

    8 years Today marks 8 years since our world got flipped upside down with the 3 words “Duchenne Muscular Dystrophy.” I distinctly remember my tears. We made it home from Omaha after the diagnosis. Max… Read more

  • Front Row Seats

    We live it people! We live life! Eight years ago when our boys with diagnosed with Duchenne; it was our first decision. We were going to live life in spite of Duchenne! We go and… Read more

  • I took the dog to the vet today. She needed an allergy shot. For just a quick minute I thought, “if this is biggest thing I have to worry about today, I lead a pretty… Read more

  • Let Joy Outweigh Sorrow

    In my prayers the other day I made note that I haven’t been able to write. Writing is such a therapy for me and it just wasn’t there. Yesterday though, there was finally something on… Read more

  • …Joy continued

    My mood today can be summed up by telling you that I’m wearing the same pair of jeans I wore the last 3 days and the Earl May sign that reads, “now is the right… Read more

Welcome to my blog!

I’m Betty, a married mother of seven. Three of my sons live with Duchenne muscular dystrophy. I am a faith loving person, who loves to cook and read, but mostly mother. I use this blog to share recipes, review books, and share my parenting and faith journeys.

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