Life with Duchenne and Faith Journey Blog Posts

  • Neon Lights, Purses and Metaphors

    I want a flashing neon light pointing me in the right direction answering my questions.I ask Him often for one, but God has yet to send me one. This week he sent me a purse… Read more

  • Acceptance creates Accessibilty

    I am not an expert on accessibility, culture or acceptance. Before my sons were diagnosed with Duchenne Muscular Dystrophy I didn’t know what I didn’t know. After 8 years, I am still learning, but I… Read more

  • Dog Crap Kind of Day

    It’s been a day. After reflecting on my yesterday, I should have seen it coming. I cleaned bathrooms yesterday. I hate cleaning bathrooms. But I cleaned them. I even painted the basement bathroom before cleaning… Read more

  • Max’s Blessings

    I met Max at school yesterday at 11:05 so that I could carry him downstairs to the lunch room. It’s the same most days. Yesterday, as he was on my back he rested his head… Read more

  • Shrapnel, Memories, Love, Joy & Walls

    There is a wall in my heart that I know was erected as a protection against being hurt. But I am ready to let it come down so that my heart can heal. Read more

  • Thoughts for My Birthday

    I turn 38 this week. I know some think that sounds old, more of you probably think it sounds young. I have had enough hard life experiences though to make me feel much older than… Read more

  • Birthday Boys

    My birthday boys, then and now, will be 7 and 9 this week. I’ve been in the worst mood the last two days. At first, I thought it was the more typical mom feeling of… Read more

  • Joy, Always

    So I’m up at the Y, riding a stationary bike and I realize it is the only time I have to write this. I wanted this to be profound and my best writing yet, but… Read more

  • Funeral Dresses

    Last spring we stopped at a Marshall’s. I don’t remember what we were looking for, but there was a clearance rack of dresses. I knew I had an important meeting coming up and looked for… Read more

  • No escape

    I woke up on a Wednesday morning inspired to write a blog about joy. I wore a ‘joy’ shirt and took a selfie for the blog. Then came the phone call. I never wrote the… Read more

Welcome to my blog!

I’m Betty, a married mother of seven. Three of my sons live with Duchenne muscular dystrophy. I am a faith loving person, who loves to cook and read, but mostly mother. I use this blog to share recipes, review books, and share my parenting and faith journeys.

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